Update from yesterday: I heard from Kevin's wife, the surgery went well. We continue our thoughts and prayers for Kevin's continued well being and recovery.
In an email from a regular reader, Greg Campbell asked one of the questions I found myself asking when first diagnosed.
“Wow. And as an uneducated patient, how do you make the choice? Faith in your doctors I guess.”
I understand Greg's comment. Just as you are trying to deal with the fact you have cancer, you're told there are a number of treatment modalities from which to choose. "No problem Doc...which one do you suggest?"............(insert the sound of crickets chirping here) He only tells you each choice has pros and cons to consider.
Like Greg, I had grown up trusting my doctors and following their advice/direction. However, in today's environment, once diagnosed with a cancer like mine (good outcomes almost assured regardless of the treatment chosen) my trusted physician would only provide information on the options, suggest I further educate myself as much as possible on the advantages and disadvantages of each option, and then make my own selection.
This was my exact response to Greg:
“Trust in doctors is important, but they can't make a choice for you, nor will they. A diagnosis of cancer has a way of focusing your attention and commitment to educate yourself...then, you make the best decision you can and go with it.”
I was lost for about two weeks, talking to anyone who would listen, seeking the advice of survivors about their choices, and reading every article I could find online. It was information overload. "Why the hell won't he just tell me what I ought to do?" I asked myself, "At least he could tell me what he would do if he were in my place."
Of particular frustration was the very knowledge that my chances for a good outcome from the cancer seemed excellent...but the resulting effects of the treatment, should I choose incorrectly, could change my life for weeks, months, years, even...for life. It could change the life of everyone close to me as well.
Once I made my decision, with agreement from Lucia, although still not certain I knew enough to arrive at the best possible decision, I refused to allow any shadow of doubt to cloud my commitment. I had to.
In the end, I found the experience an affirming and liberating one. I now understand and acknowledge I am in control of my health care...a full partner with the medical community.
Tuesday, January 31, 2012
Monday, January 30, 2012
He's on the table today...
As I write this, a friend, business partner, and mentor is undergoing prostate surgery in Phoenix. Kevin, of whom I have written in an earlier post, was diagnosed with nearly identical numbers to mine at about the same time. In our subsequent conversations, it was Kevin who made the first cogent argument for the surgical option as I was debating a treatment choice.
We have had a few conversations following my surgery/recovery during which I was pleased to be able to provide Kevin with experiences and impressions from my perspective (recognizing that my experience cannot be generalized to anyone else). Many of Kevin's questions were the same questions I had...catheter, discomfort, catheter, complications, catheter, and, of course, that pesky catheter.
Unlike my experience, Kevin's surgery is an open surgery as his surgeon favors the open technique much as the surgeon with whom I was comfortable favored robotic prostatectomy. Just as with the choice of treatment option, the choice of approach is a personal decision and not a matter for argument or comparison.
Prostate cancer, like any disease, is an intensely personal thing. No two patients will have the same experiences or reactions and it is not our place to advocate for any specific treatment choice. Rather, it is our call to be advocates for prostate health education, continued research, and to provide support for those who find themselves facing the decisions/events we have faced.
I wish you well Kevin. Just ten weeks ago today I was back in my room wondering what the next several weeks would hold (and how the hell I was going to put up with the catheter for ten days or so).
May your next ten weeks be as rewarding a period of personal growth and renewal as mine have been.
We have had a few conversations following my surgery/recovery during which I was pleased to be able to provide Kevin with experiences and impressions from my perspective (recognizing that my experience cannot be generalized to anyone else). Many of Kevin's questions were the same questions I had...catheter, discomfort, catheter, complications, catheter, and, of course, that pesky catheter.
Unlike my experience, Kevin's surgery is an open surgery as his surgeon favors the open technique much as the surgeon with whom I was comfortable favored robotic prostatectomy. Just as with the choice of treatment option, the choice of approach is a personal decision and not a matter for argument or comparison.
Prostate cancer, like any disease, is an intensely personal thing. No two patients will have the same experiences or reactions and it is not our place to advocate for any specific treatment choice. Rather, it is our call to be advocates for prostate health education, continued research, and to provide support for those who find themselves facing the decisions/events we have faced.
I wish you well Kevin. Just ten weeks ago today I was back in my room wondering what the next several weeks would hold (and how the hell I was going to put up with the catheter for ten days or so).
May your next ten weeks be as rewarding a period of personal growth and renewal as mine have been.
Friday, January 27, 2012
Of prayer and prostates
At a meeting this morning, I learned of a friend who received about the worst cancer news one can receive. It was suggested notes of encouragement would be appreciated...I'll write mine as soon as I'm through here.
I served a church for four years after leaving seminary (more than 30 years ago) and discovered, to everyone's benefit, I lacked the temperament to be an effective minister; it's a sure sign when your first instinct is to strangle any parent who volunteered to chaperon a teen dance only to cancel at the last minute. But this isn't about that.
I'm a very good prayer, I write terrific prayers...but I never had any visceral attachment to prayer...until my prostatectomy. If I had to be placed on a theological continuum from screaming fundamentalist to existential secular humanist, for most of my thinking life I would have fallen close to the latter.
Whenever people offered thoughts and prayers (T&P) I graciously accepted the offer but had no feeling of having received anything. Similarly, when I offered T&P I was sincere in the offer, but never felt any metaphysical reality in the act.
I have neither an explanation nor intellectual understanding of my change, but those feelings (or lack thereof) have been replaced with both acceptance and true appreciation for the importance and absolute value of prayer in times of distress.
In the hospital, I felt the prayers people offered on my behalf, I was strengthened by them. And, when I offer the same today I feel the power of the words and believe they are received and efficacious.
OK, it took me sixty-plus years and prostate cancer to accept what most five year olds know instinctively. It's a better way to be.
I served a church for four years after leaving seminary (more than 30 years ago) and discovered, to everyone's benefit, I lacked the temperament to be an effective minister; it's a sure sign when your first instinct is to strangle any parent who volunteered to chaperon a teen dance only to cancel at the last minute. But this isn't about that.
I'm a very good prayer, I write terrific prayers...but I never had any visceral attachment to prayer...until my prostatectomy. If I had to be placed on a theological continuum from screaming fundamentalist to existential secular humanist, for most of my thinking life I would have fallen close to the latter.
Whenever people offered thoughts and prayers (T&P) I graciously accepted the offer but had no feeling of having received anything. Similarly, when I offered T&P I was sincere in the offer, but never felt any metaphysical reality in the act.
I have neither an explanation nor intellectual understanding of my change, but those feelings (or lack thereof) have been replaced with both acceptance and true appreciation for the importance and absolute value of prayer in times of distress.
In the hospital, I felt the prayers people offered on my behalf, I was strengthened by them. And, when I offer the same today I feel the power of the words and believe they are received and efficacious.
OK, it took me sixty-plus years and prostate cancer to accept what most five year olds know instinctively. It's a better way to be.
Thursday, January 26, 2012
A hot spot for a cold day
It's a dreary, damp, cold day in Ohio today...here's something that warmed me up. And while it doesn't target prostate cancer, it's in the area.
Watch all the way through! Warning...adult content.
Another one of those great British commercials that will never get airplay in North America. It sure as hell gets one’s attention and the message across.
Sent in the interest of public safety.
You may have to copy and paste into your browser...it's worth the effort!
http://adsoftheworld.com/media/tv/mcac_rhian_touches_herself
Watch all the way through! Warning...adult content.
Another one of those great British commercials that will never get airplay in North America. It sure as hell gets one’s attention and the message across.
Sent in the interest of public safety.
You may have to copy and paste into your browser...it's worth the effort!
http://adsoftheworld.com/media/tv/mcac_rhian_touches_herself
Wednesday, January 25, 2012
You be the judge
The following are a few more comments recently received...I try not to judge, but it seems the Masons of New Zealand are taking the more measured approach. Note: I have not altered, nor do I take responsibility for, spelling or capitalization in the following comments:
1) Greetings - The Grand Lodge of New Zealand has had a focus on prostate cancer (P.C.) awareness for a couple of years now with every Lodge in New Zealand holding open meetings with a invited specialist doctors to come and talk to Freemasons and their friends about P.C.
Gary Severinsen PM & Past Grand DC
2) I've heard of a man in Europe (Austria) with the general cure, using herbs. If need be, I can try and find a way to get in touch with him. Otherwise, one friend told me about a clinic in Texas, which has proven they've cured over 10k+ people. Here is some info, and the link to their site. Good Luck, stay happy and healthy.
Burzynski Clinic is a unique organization providing a wide variety of advanced cancer treatments, including Antineoplaston treatment and personalized treatment plans.At the Burzynski Clinic we offer a variety of Personalized Treatment options - advanced gene-targeted medications custom-selected for each patient, based on the identification of the ontogenesis involved in their particular cancer. We do not use the same old cooker-cutter treatment plans that you may find at other oncology facilities big and small. Our cancer therapies are groundbreaking, non-surgical, non or low toxic cancer treatment regimens, some available within clinical trials.
3) Stories abound..my aunt recently overcame a bout of cancer that almost had her..sloan kittering..and the mayo clinic had to surgically implant a metallic device to her liver..infused with chemo and medicine...it worked she is cured...however..what intrigues me ..are the stores of rene the canadian nurse whom with an extract of native american herbs made into a tea alledgedly cured over 30 million of cancer..i believe homeopathic as well as chemo and western medications work..it has to do with a build up of toxins in the body, that cause aggravated cell mutations and thus cancer..the key a clean system excercise..pleanty of sweating out toxins..a balanced diet..and a keen and happy mind..devoid of as much stress as possible..it may sound..too "vegan" hortocultural for some..but by god it works..
I understand the appeal of alternative approaches and the sincerity of those who espouse them. I understand, too, the desire to find a “magic bullet” for prostate, and other, cancer (particularly if traditional treatments have proven ineffective or offer no hope). I fear, however, some may unnecessarily delay treatment of what is often a very curable disease.
Sermon: Don't Delay! End of sermon.
1) Greetings - The Grand Lodge of New Zealand has had a focus on prostate cancer (P.C.) awareness for a couple of years now with every Lodge in New Zealand holding open meetings with a invited specialist doctors to come and talk to Freemasons and their friends about P.C.
Gary Severinsen PM & Past Grand DC
2) I've heard of a man in Europe (Austria) with the general cure, using herbs. If need be, I can try and find a way to get in touch with him. Otherwise, one friend told me about a clinic in Texas, which has proven they've cured over 10k+ people. Here is some info, and the link to their site. Good Luck, stay happy and healthy.
Burzynski Clinic is a unique organization providing a wide variety of advanced cancer treatments, including Antineoplaston treatment and personalized treatment plans.At the Burzynski Clinic we offer a variety of Personalized Treatment options - advanced gene-targeted medications custom-selected for each patient, based on the identification of the ontogenesis involved in their particular cancer. We do not use the same old cooker-cutter treatment plans that you may find at other oncology facilities big and small. Our cancer therapies are groundbreaking, non-surgical, non or low toxic cancer treatment regimens, some available within clinical trials.
3) Stories abound..my aunt recently overcame a bout of cancer that almost had her..sloan kittering..and the mayo clinic had to surgically implant a metallic device to her liver..infused with chemo and medicine...it worked she is cured...however..what intrigues me ..are the stores of rene the canadian nurse whom with an extract of native american herbs made into a tea alledgedly cured over 30 million of cancer..i believe homeopathic as well as chemo and western medications work..it has to do with a build up of toxins in the body, that cause aggravated cell mutations and thus cancer..the key a clean system excercise..pleanty of sweating out toxins..a balanced diet..and a keen and happy mind..devoid of as much stress as possible..it may sound..too "vegan" hortocultural for some..but by god it works..
I understand the appeal of alternative approaches and the sincerity of those who espouse them. I understand, too, the desire to find a “magic bullet” for prostate, and other, cancer (particularly if traditional treatments have proven ineffective or offer no hope). I fear, however, some may unnecessarily delay treatment of what is often a very curable disease.
Sermon: Don't Delay! End of sermon.
Tuesday, January 24, 2012
Up Yours
In thinking more about the article in February's "Scientific American," a very basic flaw struck me. In the discussion of testing for prostate cancer, I don't recall any mention of DRE (digital rectal examination)...a glaring omission. The importance of regular DRE cannot be overstated.
Ask Ken Jones who never had a PSA score above 2, yet a DRE presented as abnormal; during subsequent surgery, a tennis ball sized tumor was revealed growing outside the prostate. Note: Ken, feel free to correct and/or expand upon my recollection.
Certainly no one looks forward to the doctor snapping on the rubber glove and flexing, what feels like, his (or, God forbid, her...sorry, I've not evolved to that degree) fourteen inch finger...I'm quite sure the doctor isn't thrilled about it either. Yet it is, none-the-less, an indispensable diagnostic procedure.
However, just as one should not rely upon the PSA test in isolation (something the article fails to consider), the DRE is only one of a series of tests useful in constructing the profile of a patient's prostate health.
DRE is a simple procedure every adult male should insist upon at regular intervals. Let's begin a campaign to make UP YOURS a call to health!!
Ask Ken Jones who never had a PSA score above 2, yet a DRE presented as abnormal; during subsequent surgery, a tennis ball sized tumor was revealed growing outside the prostate. Note: Ken, feel free to correct and/or expand upon my recollection.
Certainly no one looks forward to the doctor snapping on the rubber glove and flexing, what feels like, his (or, God forbid, her...sorry, I've not evolved to that degree) fourteen inch finger...I'm quite sure the doctor isn't thrilled about it either. Yet it is, none-the-less, an indispensable diagnostic procedure.
However, just as one should not rely upon the PSA test in isolation (something the article fails to consider), the DRE is only one of a series of tests useful in constructing the profile of a patient's prostate health.
DRE is a simple procedure every adult male should insist upon at regular intervals. Let's begin a campaign to make UP YOURS a call to health!!
Monday, January 23, 2012
Scientific American meets Prostate Cancer
Over the weekend, I stopped at a bookstore for coffee and to look through recent magazines (I took “Plane and Pilot,” “American Handgunner,” and February's "Scientific American" (henceforward, SA). Opening SA, I was confronted with an article on Prostate Cancer...how timely!
The SA article focused on the controversies surrounding diagnosis and treatment with, what I'm choosing to cite as, three major themes: The controversy of PSA testing, the controversy of biopsy, and the controversy of existing treatment modalities.
PSA testing we know about...too many false positives resulting in...too many biopsy's which, even when cancer is present, do not provide enough information regarding the nature of the cancer identified resulting in...too many treatment procedures with their accompanying side effects and complications.
All of the above are valid concerns...and I couldn't care less. Once the biopsy confirmed the presence of cancer cells, for me there was no controversy...get this crap out of me!
Certainly our understanding is far from complete and our testing/treatment will be viewed as primitive in the not too distant future; I repeat, I could not care less. My experience, to date, has far exceeded expectations. If I could have been guaranteed that waiting would have no negative consequences, would I have delayed treatment? Perhaps, but no such guarantee exists.
The Scientific American article reports only 4% of prostate cancers will become aggressive and life-threatening. For all the others, there is no downside to delaying treatment. Those are mighty good odds...UNLESS you happen to be in that 4% for whom the number becomes 100%. At that point, I'm sure I would wish I had opted for one of the existing treatments. I'm just sayin'..........................
The SA article focused on the controversies surrounding diagnosis and treatment with, what I'm choosing to cite as, three major themes: The controversy of PSA testing, the controversy of biopsy, and the controversy of existing treatment modalities.
PSA testing we know about...too many false positives resulting in...too many biopsy's which, even when cancer is present, do not provide enough information regarding the nature of the cancer identified resulting in...too many treatment procedures with their accompanying side effects and complications.
All of the above are valid concerns...and I couldn't care less. Once the biopsy confirmed the presence of cancer cells, for me there was no controversy...get this crap out of me!
Certainly our understanding is far from complete and our testing/treatment will be viewed as primitive in the not too distant future; I repeat, I could not care less. My experience, to date, has far exceeded expectations. If I could have been guaranteed that waiting would have no negative consequences, would I have delayed treatment? Perhaps, but no such guarantee exists.
The Scientific American article reports only 4% of prostate cancers will become aggressive and life-threatening. For all the others, there is no downside to delaying treatment. Those are mighty good odds...UNLESS you happen to be in that 4% for whom the number becomes 100%. At that point, I'm sure I would wish I had opted for one of the existing treatments. I'm just sayin'..........................
Friday, January 20, 2012
Seduction
Being seduced is, by definition, a very subtle process. As the one being seduced, I never even knew it was happening until it struck me this morning...I had, indeed, fallen victim to my own selfish animal nature.
As I've mentioned so many times, being a surgical virgin, I was not prepared for the recovery process and the length of time it takes to regain one's energy. I tried to abide by the advice offered by those with more experience in matters surgical...prostate or otherwise, and that was the beginning.
Rest is a good thing, and it's an absolute must during recovery whether you want it or not. I spent most of the day on the couch, napping often, for nearly three weeks. As strength returned, I ventured away from my beloved couch for increasing periods of time...but my thoughts were of the warm blanket and pillow waiting for my return. In the door, on the couch, under the blanket, nap.
I lost about ten pounds in the first week following surgery. Once my appetite returned I concluded nourishment was a top priority...not nutrition, just nourishment. So I began eating and everyone thought it was great! I haven't stopped.
Before the surgery I was very fit (not thin, but fit),committed to exercise, and careful about my diet. This week I was cleared to return to running and hit the road...until the ice came...then I hit the treadmill. When the alarm went off this morning I did not want to get up, but I've faced that demon before. Fighting the urge to remain in bed, I got up, dressed, and out to the treadmill.
I thought about how easy it had become to just eat without thought, to remain sedentary (my beloved couch), to “recover.” Then it came to me; I had been seduced by the recovery lifestyle...this is not a good thing.
Recovery is neither a lifestyle nor an excuse, recovery is only a brief interlude before returning to life as usual (hopefully an active and healthy life). You know what's good for you, don't allow yourself to be seduced.
As I've mentioned so many times, being a surgical virgin, I was not prepared for the recovery process and the length of time it takes to regain one's energy. I tried to abide by the advice offered by those with more experience in matters surgical...prostate or otherwise, and that was the beginning.
Rest is a good thing, and it's an absolute must during recovery whether you want it or not. I spent most of the day on the couch, napping often, for nearly three weeks. As strength returned, I ventured away from my beloved couch for increasing periods of time...but my thoughts were of the warm blanket and pillow waiting for my return. In the door, on the couch, under the blanket, nap.
I lost about ten pounds in the first week following surgery. Once my appetite returned I concluded nourishment was a top priority...not nutrition, just nourishment. So I began eating and everyone thought it was great! I haven't stopped.
Before the surgery I was very fit (not thin, but fit),committed to exercise, and careful about my diet. This week I was cleared to return to running and hit the road...until the ice came...then I hit the treadmill. When the alarm went off this morning I did not want to get up, but I've faced that demon before. Fighting the urge to remain in bed, I got up, dressed, and out to the treadmill.
I thought about how easy it had become to just eat without thought, to remain sedentary (my beloved couch), to “recover.” Then it came to me; I had been seduced by the recovery lifestyle...this is not a good thing.
Recovery is neither a lifestyle nor an excuse, recovery is only a brief interlude before returning to life as usual (hopefully an active and healthy life). You know what's good for you, don't allow yourself to be seduced.
Wednesday, January 18, 2012
Chicks dig it
Having a prostatectomy is rarely, if ever, a babe magnet...I mean, think about it (OK, that's long enough). However, it has been my hope to attract a few female readers to champion the prostate health cause at home with their spouse, father, brothers, etc..
This morning I was greeted with a comment from a reader who told me just what I want to hear:
“I read your blogs last night and I always enjoy your humor even with such a serious subject. I found what you wrote to be very, very informative. I knew that PC, if detected early, was treatable but I didn't realize all that must be endured with the treatment. You can add one more female who thinks it’s great that you are trying to heighten the awareness. Fortunately my husband does have his prostate checked yearly. My challenge would be to get him to read something other than a business periodical or work reports! In the meantime I’m happy to tell him about it.”
Bingo! Keep on telling the story.
This morning I was greeted with a comment from a reader who told me just what I want to hear:
“I read your blogs last night and I always enjoy your humor even with such a serious subject. I found what you wrote to be very, very informative. I knew that PC, if detected early, was treatable but I didn't realize all that must be endured with the treatment. You can add one more female who thinks it’s great that you are trying to heighten the awareness. Fortunately my husband does have his prostate checked yearly. My challenge would be to get him to read something other than a business periodical or work reports! In the meantime I’m happy to tell him about it.”
Bingo! Keep on telling the story.
Tuesday, January 17, 2012
Vitamins and Prostate Cancer
I have used vitamins and supplements most of my adult life following the advice of, whom I consider, some very knowledgeable people. Once I had decided upon surgery, the surgeon advised me to stop taking all vitamins and supplements 10 days prior to the procedure and not resume for six to ten weeks following. I asked what vitamins he would suggest and got a look like I had ordered something on a croissant at a biker bar. After fumbling around for a minute or two, he suggested I could resume the multi-vitamin...and maybe some vitamin D.
Finding his answer less than enthusiastic, I went online to see what research I could find and was greeted with nearly 16-million resulting answers.
It seems there is no clear protocol for post-prostatectomy vitamins. In fact, it is obvious there is no agreement upon vitamins and supplements for prostate health period let alone post-prostatectomy.
Conflicting opinions occupy side-by-side positions...Vitamin E causes Prostate Cancer, Vitamin E prevents Prostate Cancer by two mechanisms, Vitamin E increases the risk of Prostate Cancer, Vitamin D prevents Prostate Cancer, Vitamin D has little effect on Prostate Cancer, etc., etc, etc. ad nauseam.
I'm going to my most trusted pharmacist next week to establish a new regimen; if you have any thoughts on the issue I'd be happy to hear them.
Finding his answer less than enthusiastic, I went online to see what research I could find and was greeted with nearly 16-million resulting answers.
It seems there is no clear protocol for post-prostatectomy vitamins. In fact, it is obvious there is no agreement upon vitamins and supplements for prostate health period let alone post-prostatectomy.
Conflicting opinions occupy side-by-side positions...Vitamin E causes Prostate Cancer, Vitamin E prevents Prostate Cancer by two mechanisms, Vitamin E increases the risk of Prostate Cancer, Vitamin D prevents Prostate Cancer, Vitamin D has little effect on Prostate Cancer, etc., etc, etc. ad nauseam.
I'm going to my most trusted pharmacist next week to establish a new regimen; if you have any thoughts on the issue I'd be happy to hear them.
Monday, January 16, 2012
One more milestone
Very early in the history of this blog I identified six milestones for every Prostate Cancer survivor who opts for surgery. In addition to these general milestones, there are personal goals we establish for ourselves as we move through recovery.
For me, a return to running was a milestone that, at the time of surgery, seemed to exist in the distant future, but this morning I hit the road for the first time. I didn't run far (just a bit more than a mile) and I didn't run well (but then again...I never did), but I got up, got dressed for the 19 degree morning, and got out there.
If you happen to be a pilot, you know we never forget our first solo flight; we also never forget how marginal were our piloting skills at the time. But the act of taking off and returning safely to the ground three times did more for our confidence than we could have realized at the moment.
Much like a student pilot, this morning's run was a real confidence boost. No stitches popped, nothing leaked (a real concern), and my legs have not forgotten what to do (my lungs, on the other hand, need some work). I'll slowly build my distance before I even think about speed, and I have a race at the end of April as a goal toward which I'm working.
Goals are important...indeed, goals are essential in recovery. Be prudent in choosing goals, pay attention to the guidelines provided by your surgical team, then...get out there and fly!
For me, a return to running was a milestone that, at the time of surgery, seemed to exist in the distant future, but this morning I hit the road for the first time. I didn't run far (just a bit more than a mile) and I didn't run well (but then again...I never did), but I got up, got dressed for the 19 degree morning, and got out there.
If you happen to be a pilot, you know we never forget our first solo flight; we also never forget how marginal were our piloting skills at the time. But the act of taking off and returning safely to the ground three times did more for our confidence than we could have realized at the moment.
Much like a student pilot, this morning's run was a real confidence boost. No stitches popped, nothing leaked (a real concern), and my legs have not forgotten what to do (my lungs, on the other hand, need some work). I'll slowly build my distance before I even think about speed, and I have a race at the end of April as a goal toward which I'm working.
Goals are important...indeed, goals are essential in recovery. Be prudent in choosing goals, pay attention to the guidelines provided by your surgical team, then...get out there and fly!
Friday, January 13, 2012
One final reader's comment of the week
A few weeks ago, I cited a study indicating 90% of prostate cancer can be attributed to dietary factors. David Daugherty, a friend, mentor, and faithful follower of this blog, found the link below to a study with another opinion.
Researchers say they've identified a rare inherited gene mutation that significantly increases the risk of prostate ...
http://android.localwireless.com/wap/news/text.jsp?sid=96&nid=441120756&cid=11293&scid=-1
While neither this study nor the dietary study stand as mutually exclusive, it remains a question without a simple answer.
Although causation is not the primary focus of this blog, once one has been diagnosed the question of “Where the hell did it come from?” closely follows “Why me?”. Competing theories abound; I'm certain one could find a study, financed by the International House of Pancakes, pointing to flapjack deficency as a contributing factor.
One day, complete understanding of the genesis and mechanism of the disease will lead to prevention. Until then, early detection and treatment, whatever modality chosen, will remain our mantra. Bend over.
Researchers say they've identified a rare inherited gene mutation that significantly increases the risk of prostate ...
http://android.localwireless.com/wap/news/text.jsp?sid=96&nid=441120756&cid=11293&scid=-1
While neither this study nor the dietary study stand as mutually exclusive, it remains a question without a simple answer.
Although causation is not the primary focus of this blog, once one has been diagnosed the question of “Where the hell did it come from?” closely follows “Why me?”. Competing theories abound; I'm certain one could find a study, financed by the International House of Pancakes, pointing to flapjack deficency as a contributing factor.
One day, complete understanding of the genesis and mechanism of the disease will lead to prevention. Until then, early detection and treatment, whatever modality chosen, will remain our mantra. Bend over.
Thursday, January 12, 2012
Brothers below the waist
It's very common for individuals recently diagnosed with an illness to feel a degree of isolation. A feeling that manifests itself in self-talk populated with statements like, “why me?” and “no one understands what I'm going through.” Prostate cancer is much the same. The first few days (weeks) are indeed lonely as we question how we're going to make the decisions that need to be made.
I was lucky to have knowledgeable friends who directed me to available support groups and websites where I could hear from other men...I was even more pleased when men began coming forward to tell me their stories and, perhaps more importantly, listen to mine.
Now, men are contacting me daily to tell their stories of colon cancer, testicular cancer, and more. It's as if, once we discover someone has endured an illness we feel a certain sense of security in sharing our own journey. And that sharing seems easier if both parties have experienced a below the waist illness.
Talks quickly turn to stories about being shaved, the catheter, how surprisingly easy it was to display our traumatized, irradiated, and/or bruised nether region to young (and old) nurses, post treatment embarrassing moments and victories.
Ultimately, men are fairly uncomplicated lifeforms...lifeforms that still find farts funny and worry about regaining control of things that haven't been out of control since we were infants.
Brothers below the waist unite...you are not alone, we stand ready to listen and provide whatever we have to offer. We need a secret sign (yeah, guys still like secret signs too) to identify us to one another and facilitate more communication...I'm open to suggestions.
I was lucky to have knowledgeable friends who directed me to available support groups and websites where I could hear from other men...I was even more pleased when men began coming forward to tell me their stories and, perhaps more importantly, listen to mine.
Now, men are contacting me daily to tell their stories of colon cancer, testicular cancer, and more. It's as if, once we discover someone has endured an illness we feel a certain sense of security in sharing our own journey. And that sharing seems easier if both parties have experienced a below the waist illness.
Talks quickly turn to stories about being shaved, the catheter, how surprisingly easy it was to display our traumatized, irradiated, and/or bruised nether region to young (and old) nurses, post treatment embarrassing moments and victories.
Ultimately, men are fairly uncomplicated lifeforms...lifeforms that still find farts funny and worry about regaining control of things that haven't been out of control since we were infants.
Brothers below the waist unite...you are not alone, we stand ready to listen and provide whatever we have to offer. We need a secret sign (yeah, guys still like secret signs too) to identify us to one another and facilitate more communication...I'm open to suggestions.
Wednesday, January 11, 2012
Comments take three...
One of the benefits of writing this blog has been the many informative comments I've received from readers.
ME in Phoenix, who has not had prostate cancer, wrote:
My hunting bud is a surgical assistant in Scottsdale, Az. He has done THOUSANDS of seed implants & says it's easy. But the downside, once you do the seed, it turns the gland to mush making it VERY difficult to remove if need be in the future.
4 of my other friends had theirs OUT. A little Viagra & you're good to go!!
I'd have it removed without a second thought.
Now that I'm looking at 62, I may check into the blue pill myself...
I sighted future options as the deciding factor in my treatment decision.
RDW, who does not provide a location, contributed the following:
The good news is - If you get Cancer, Prostate is the one to get.
This is the "Cutting Edge" treatment that I received earlier this year.
http://www.calypsomedical.com/
I had not heard of this procedure that appears, to this very non-medical author, to be a refinement of open radiation incorporating GPS tracking, to greatly improve efficacy and reduce errant irradiation, available in a few locations in my state (Ohio). Take a look, the website again is http://www.calypsomedical.com/ I think you'll find it very informative.
ME in Phoenix, who has not had prostate cancer, wrote:
My hunting bud is a surgical assistant in Scottsdale, Az. He has done THOUSANDS of seed implants & says it's easy. But the downside, once you do the seed, it turns the gland to mush making it VERY difficult to remove if need be in the future.
4 of my other friends had theirs OUT. A little Viagra & you're good to go!!
I'd have it removed without a second thought.
Now that I'm looking at 62, I may check into the blue pill myself...
I sighted future options as the deciding factor in my treatment decision.
RDW, who does not provide a location, contributed the following:
The good news is - If you get Cancer, Prostate is the one to get.
This is the "Cutting Edge" treatment that I received earlier this year.
http://www.calypsomedical.com/
I had not heard of this procedure that appears, to this very non-medical author, to be a refinement of open radiation incorporating GPS tracking, to greatly improve efficacy and reduce errant irradiation, available in a few locations in my state (Ohio). Take a look, the website again is http://www.calypsomedical.com/ I think you'll find it very informative.
Tuesday, January 10, 2012
More comments from men with guns
Continuing with comments from the firearm forums...this one concludes with a call to action and the dire consequences that may follow if one ignores prostate health. The author, Fibonacci in East Texas, then invited other forum members to address questions to him...the network is growing!
Thanks for posting this, Bill Sharp.
You are right when you say in your blog that men don't talk about this enough. I think that we are where women were 30-40 years ago when nobody mentioned breast cancer.
Men are more likely to get prostate cancer than women are to get breast cancer.
My surgery was March 2006 and I would make the same decision again if I had to make it again.
GUYS...get your PSA test every year, even if you have to pay for it yourself. This cancer is curable if you find it before it is out of the prostate. It is not curable after it gets out of the prostate. Those cases result in over 30,000 deaths annually!
If any of you want personal direct conversation about my experiences, send me a message and we'll connect. I'll answer any and ALL questions about my case. I volunteer with the MD Anderson network and am willing to help.
Thanks for posting this, Bill Sharp.
You are right when you say in your blog that men don't talk about this enough. I think that we are where women were 30-40 years ago when nobody mentioned breast cancer.
Men are more likely to get prostate cancer than women are to get breast cancer.
My surgery was March 2006 and I would make the same decision again if I had to make it again.
GUYS...get your PSA test every year, even if you have to pay for it yourself. This cancer is curable if you find it before it is out of the prostate. It is not curable after it gets out of the prostate. Those cases result in over 30,000 deaths annually!
If any of you want personal direct conversation about my experiences, send me a message and we'll connect. I'll answer any and ALL questions about my case. I volunteer with the MD Anderson network and am willing to help.
Monday, January 9, 2012
Comments from forums
Last week I mentioned posting on some gun related forums in an attempt to attract more men to this blog. This week I thought I'd post some of the comments I received on those forums.
One important comment I received, from Jake514 in Texas, offered a cautionary note I very much appreciated:
“Several aspects of my experience is similar to what has been previously mentioned, HOWEVER I would like to caution everyone that prostate cancer can occur with a low PSA. (emphasis by Jake514)
My PSA score never got over 3.4, with no pain but my biopsy indicated 8 of the 12 needles showing cancer. My score was 6 & 7, and the doctor said it was a very aggressive type. I had the di Vanci method of radical prostatectomy in Nov. 2009. One of the worse parts was thinking I was going to accidentally catch the Foley catheter hose on something and accidentally pull it out (not good).
So far all is good and I get rechecked every 6 months. Thank God for giving the doctor his skill and also modern medicine. PM me if anyone has any specific questions as I am not a doctor but did sleep at a Holiday Inn last night. “
Another comment reflected Simple Member's (no location given) concern regarding the genetic component of prostate cancer (of course, it could also be read as a rhetorical question):
“Glad to hear that they seem to have a handle on it.
My brother was diagnosed with it last week, waiting for test results to determine how to treat it. My dad also had it. Wonder what my chances are?”
Other members of the forums responded thereby opening a dialog about prostate cancer ...SCORE!
One important comment I received, from Jake514 in Texas, offered a cautionary note I very much appreciated:
“Several aspects of my experience is similar to what has been previously mentioned, HOWEVER I would like to caution everyone that prostate cancer can occur with a low PSA. (emphasis by Jake514)
My PSA score never got over 3.4, with no pain but my biopsy indicated 8 of the 12 needles showing cancer. My score was 6 & 7, and the doctor said it was a very aggressive type. I had the di Vanci method of radical prostatectomy in Nov. 2009. One of the worse parts was thinking I was going to accidentally catch the Foley catheter hose on something and accidentally pull it out (not good).
So far all is good and I get rechecked every 6 months. Thank God for giving the doctor his skill and also modern medicine. PM me if anyone has any specific questions as I am not a doctor but did sleep at a Holiday Inn last night. “
Another comment reflected Simple Member's (no location given) concern regarding the genetic component of prostate cancer (of course, it could also be read as a rhetorical question):
“Glad to hear that they seem to have a handle on it.
My brother was diagnosed with it last week, waiting for test results to determine how to treat it. My dad also had it. Wonder what my chances are?”
Other members of the forums responded thereby opening a dialog about prostate cancer ...SCORE!
Friday, January 6, 2012
I never expected this...
A quick observation for Friday. This morning in the bathroom (wait, wait...it's nothing icky, gross, or overly anatomical) I was looking at the incisions from my surgery and noted with particular interest the site closest to my navel. In healing, the skin has been stretched toward the incision giving the impression my belly button is winking!
Just one of the unexpected benefits of my chosen treatment modality (you don't get that with seeds!).
Just one of the unexpected benefits of my chosen treatment modality (you don't get that with seeds!).
Thursday, January 5, 2012
With apologies to Allen Drury..."Advice and Comment"
One of the reasons I began this blog was to open dialog among men regarding prostate health (never ignoring the important/critical contributions to be made by female partners whose input I welcome and encourage). So far, it's been more of a monologue, but I'm used to talking to myself...in fact, if you know me you already know this, I love to hear myself talk.
I'm unsophisticated, untrained, and uninterested in the tactics and strategies of blog maximization. So, in an effort to reach out to more readers, I went to several of the gun owner websites I frequent, figuring I would be targeting a predominately male audience. My plan was to begin discussions in the “non-gun related” forums. And it worked!
While I did not receive a great number of comments, I was able to generate a number of questions (both insightful and surprisingly naive, we've got a lot of educating to do), some very informative responses regarding new treatment options and practical suggestions, and one blistering comment from someone who did not believe I was incontinence-free.
As the comment developed, the author had opted for prostate surgery over a year ago and was still enduring post-surgical effects. I could only offer that I carefully preface any discussion of my experience with a disclaimer that it must not be interpreted as typical. Indeed, I continued, I had fully expected to share his condition for a period of anywhere between a few weeks to more than a year!
Yesterday I received a call from a friend who was reading this blog and had a few questions about my experience as he has recently had a spike in his PSA...that's what I would like this to ultimately become, a place for the exchange of information regarding matters prostate between seekers and those far more qualified than yours truly to provide insight and direction.
I'm unsophisticated, untrained, and uninterested in the tactics and strategies of blog maximization. So, in an effort to reach out to more readers, I went to several of the gun owner websites I frequent, figuring I would be targeting a predominately male audience. My plan was to begin discussions in the “non-gun related” forums. And it worked!
While I did not receive a great number of comments, I was able to generate a number of questions (both insightful and surprisingly naive, we've got a lot of educating to do), some very informative responses regarding new treatment options and practical suggestions, and one blistering comment from someone who did not believe I was incontinence-free.
As the comment developed, the author had opted for prostate surgery over a year ago and was still enduring post-surgical effects. I could only offer that I carefully preface any discussion of my experience with a disclaimer that it must not be interpreted as typical. Indeed, I continued, I had fully expected to share his condition for a period of anywhere between a few weeks to more than a year!
Yesterday I received a call from a friend who was reading this blog and had a few questions about my experience as he has recently had a spike in his PSA...that's what I would like this to ultimately become, a place for the exchange of information regarding matters prostate between seekers and those far more qualified than yours truly to provide insight and direction.
Wednesday, January 4, 2012
6 Week check-in
Well, in my sixth week since surgery, I believe my recovery remains a week or two ahead of schedule accompanied by the bonus double surprise of restored sexual function and no incontinence (we'll see how I do with exercise when I begin to run again January 16).
While I still experience occasional pain in the area of the incisions, it would be petty to complain about something so minor after something so major.
I returned to full days at the office last week, and have regained my pre-surgical energy.
I recall looking forward to the day my pain and discomfort would be but distant memories...OK, I'm not all the way there yet, but it's within sight.
If I had to do it all over again, I would choose not to have prostate cancer...but given that was not a choice, I'm pleased with my decision to go with robotic surgery.
I continue to read the promising work being done with HIFU and other new, less invasive, treatment options. This is an exciting time to be an interested observer.
At the same time, I worry about the future of prostate cancer treatment in what may very well become a hostile environment to an aging population for an, often, easily curable cancer. The prospect of rationing of healthcare necessitated by reduced reimbursement schedules resulting in reduced availability of practitioners concerns me. And the spectre of the government doing for healthcare what it has done for the Post Office, the war on poverty, and the national debt keeps me up at night.
End of sermon...now, excuse me, I've got to think of something fun for tomorrow.
While I still experience occasional pain in the area of the incisions, it would be petty to complain about something so minor after something so major.
I returned to full days at the office last week, and have regained my pre-surgical energy.
I recall looking forward to the day my pain and discomfort would be but distant memories...OK, I'm not all the way there yet, but it's within sight.
If I had to do it all over again, I would choose not to have prostate cancer...but given that was not a choice, I'm pleased with my decision to go with robotic surgery.
I continue to read the promising work being done with HIFU and other new, less invasive, treatment options. This is an exciting time to be an interested observer.
At the same time, I worry about the future of prostate cancer treatment in what may very well become a hostile environment to an aging population for an, often, easily curable cancer. The prospect of rationing of healthcare necessitated by reduced reimbursement schedules resulting in reduced availability of practitioners concerns me. And the spectre of the government doing for healthcare what it has done for the Post Office, the war on poverty, and the national debt keeps me up at night.
End of sermon...now, excuse me, I've got to think of something fun for tomorrow.
Tuesday, January 3, 2012
Warthogs...it's a book/cover thing
As my recovery continues, I decided it would be instructive to see how I might survive a New Years Eve celebration. Checking into the hotel made me question the wisdom of my decision.
The lobby was filled with really loud, really rough, looking people covered with tattoos, all wearing leathers proclaiming them to be members of the Warthogs Motorcycle Club (Michigan Chapter), and giving the poor front desk clerk an afternoon I'm sure he won't forget judging by the perspiration streaming down his face.
Heading to the room, it seemed they followed us and the volume outside our door would rise to almost intolerable levels and then diminish...briefly...before it would rise once again. It was only 4:00pm and these animals were already out of control. I could only imagine what it was going to be like at 2:00am.
At 6:30pm, I left the room to meet the taxi coming to take me to the celebration...hallway empty, lobby empty, all quiet. Outside I noticed a large bus and the night manager, who told me she was frightened at the prospect of having to deal with the Warthogs, reported the club had boarded the bus for their party.
After the bus left, one smaller member of the club (loaded with tats) came rushing into the lobby and asked if the bus had gone. Upon learning he had missed the ride, he decided we wanted to talk to him. Oh joy............
Turns out the Warthogs are an international motorcycle club composed of police, fire, corrections and Officers of the Court personnel from the US, Canada, and Norway. Our new friend was a patrol officer from inner city Detroit. After about 15 minutes of conversation, I couldn't question these brave servants, who literally put their lives on the line for us everyday, having a right to blow off a little steam. I just wasn't very happy they were going to blow it off outside my door all night.
On returning to the hotel at 1:00am, the Warthogs had set up the Bloody Mary station in the lobby for the next morning...but were not in sight. The entire night there was not a sound in the hallway...not a sound. In fact, I wondered if they were still partying.
In the lobby the next morning they were gathering and everyone greeted me with a, "Good morning, Sir (do I look that old?), Happy New Year." It was truly a "judging a book by it's cover" lesson for me. Courtesy and respect were the only behaviors I encountered.
If I see someone in a Warthogs vest in the future, I'll remember my conversation with the Detroit cop who had been stabbed several times, shot a few more, and under daily threat in an effort to ensure peace and maintain order. I wouldn't do it...glad someone will. Thanks, Warthogs.
As far as my recovery evening, although I got pretty tired after a few fast dances later in the evening, I held up better than expected making it all the way to midnight and a celebration to have 2011 behind me and the promise of 2012 before me sans prostate (had to mention it at least once). Happy New Year!
The lobby was filled with really loud, really rough, looking people covered with tattoos, all wearing leathers proclaiming them to be members of the Warthogs Motorcycle Club (Michigan Chapter), and giving the poor front desk clerk an afternoon I'm sure he won't forget judging by the perspiration streaming down his face.
Heading to the room, it seemed they followed us and the volume outside our door would rise to almost intolerable levels and then diminish...briefly...before it would rise once again. It was only 4:00pm and these animals were already out of control. I could only imagine what it was going to be like at 2:00am.
At 6:30pm, I left the room to meet the taxi coming to take me to the celebration...hallway empty, lobby empty, all quiet. Outside I noticed a large bus and the night manager, who told me she was frightened at the prospect of having to deal with the Warthogs, reported the club had boarded the bus for their party.
After the bus left, one smaller member of the club (loaded with tats) came rushing into the lobby and asked if the bus had gone. Upon learning he had missed the ride, he decided we wanted to talk to him. Oh joy............
Turns out the Warthogs are an international motorcycle club composed of police, fire, corrections and Officers of the Court personnel from the US, Canada, and Norway. Our new friend was a patrol officer from inner city Detroit. After about 15 minutes of conversation, I couldn't question these brave servants, who literally put their lives on the line for us everyday, having a right to blow off a little steam. I just wasn't very happy they were going to blow it off outside my door all night.
On returning to the hotel at 1:00am, the Warthogs had set up the Bloody Mary station in the lobby for the next morning...but were not in sight. The entire night there was not a sound in the hallway...not a sound. In fact, I wondered if they were still partying.
In the lobby the next morning they were gathering and everyone greeted me with a, "Good morning, Sir (do I look that old?), Happy New Year." It was truly a "judging a book by it's cover" lesson for me. Courtesy and respect were the only behaviors I encountered.
If I see someone in a Warthogs vest in the future, I'll remember my conversation with the Detroit cop who had been stabbed several times, shot a few more, and under daily threat in an effort to ensure peace and maintain order. I wouldn't do it...glad someone will. Thanks, Warthogs.
As far as my recovery evening, although I got pretty tired after a few fast dances later in the evening, I held up better than expected making it all the way to midnight and a celebration to have 2011 behind me and the promise of 2012 before me sans prostate (had to mention it at least once). Happy New Year!
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