Happy First Anniversary

A year ago on this date, at this exact minute (7:20am EDT), I was on a gurney being wheeled toward the surgical suite at Riverside in Columbus. Having never had any previous surgery, I had no idea what to expect. In a few hours I'd awaken to begin a new adventure sans prostate.

One year later, I awakened this morning and ran 3.5 miles, smiling all the way at just how far I have come in the past twelve months. Recovery was something I could have done without (the catheter, the tiredness, the catheter, the discomfort, the catheter, the concern about the return of function...and, did I mention the catheter?), but it remains a distant memory.

The controversy continues over the diagnosis and treatment of prostate cancer, but for me the issue is resolved. I continue to monitor my PSA level every six months and will do so for the next four years. To date I have not noticed any lingering effects from the surgery...function has returned and I appear to be one of the fortunate one third of patients who have no negative side effects from the procedure. OK, I have developed a mild case of vertigo in the last four or five months...but the episodes are now far apart, mild, and respond well to simple exercises. Is my vertigo somehow connected to the surgery? Don't know, don't care!

Highlights of the year would be the removal of the catheter, shooting my unused Depends at the pistol range, and running my first of five races completed this season.  I must recognize Lucia's contribution to my recovery as well...she was a rock throughout giving so much more support and help than one could ask of anyone.

I'm a bit disappointed in my performance as an advocate for prostate health. Initially I was on fire to help other men...and I continue to speak with the few who have sought me out to ask questions, but the fire has cooled considerably (a natural effect of having such a full recovery I suspect). Perhaps I'll dedicate this next year to rekindling my passion and become more active...or not.

The diagnosis of prostate cancer begins a long process of confusion, fear, and anxiety; it also opens several doors to new adventures and deeper relationships. I was, and am, a fortunate man...I wish you well.

Full Term!

Today marks the nine month milestone since my surgery...I'm officially full term! I continue to read articles regarding developments in prostate cancer diagnosis and treatment, I continue to speak to every male who will listen about the importance of regular screening, and I continue to heal.

Physically, I could not be happier. Last weekend I ran yet another 5K and managed to reduce my time...I'm still slow, but I'm a better me than I was earlier in the season and that's all I'm pursuing. Everything continues to function and I have only an occasional twinge to remind me of the surgery. The scars will never look cool, but they have all healed well. In fact, I continue to marvel at how completely a body can recover from the intrusion that is surgery.

The articles continue to do battle over the efficacy of PSA testing, but I'm pretty much past that conflict. Although, now that I think about it, I am still involved in that I have my blood work done every six months specifically to monitor my PSA levels (which should be, and have been, undetectable since I no longer have a P).

My newest challenge has been the development of vertigo. Although it's only intermittent, and appears to be positional in nature, it has been an interesting condition to experience. The physician did prescribed medication, but I choose not to use it for a variety of reason (not the least of which is the warning on the label that mentions the medication may cause dizziness...HELLO). I have started a routine of exercises (more like positions than exercises), that have had a very positive, and welcomed, effect. I have an entire routine on dealing with vertigo...but maybe that's another blog.

I continue to be pleased with the decision I made for my treatment, but I continue to remind everyone that my decision was just that...mine, not for everyone. And, I remain thankful for all of that with which I have been blessed. There is a country/western song that says, “I hope some day you get the chance to live like you were dying.” One's perspective changes, focuses, and improves.

On to the next milestone.

"Harms" vs. Death

Friend and radio legend Gregg Campbell, who holds several academic records as a result of his singular college career, sent me the following link to an article entitled:

“New Data on the Harms of Prostate Cancer Testing”

http://well.blogs.nytimes.com/2012/05/21/new-data-on-harms-of-prostate-cancer-testing/

Once again we are treated to the drum beat to eliminate PSA testing from our arsenal of weapons in the fight against prostate cancer.

Quoting from the article, “Change is hard,” Dr. LeFevre said. “It’s hard for all of us, both within and outside the medical profession, to accept that not all cancers need to be detected or treated, and that there are harms associated with screening and not just benefits.”


We're being set up. Of course, the odds are in favor of most prostate cancers to be slow growing and non-lethal (non-lethal only because something else gets us first), so why not just not test, prevent potentially unnecessary and expensive (that's the key) treatment, and let the unfortunate few die? After all, we live too long and, as a consequence, consume too many Medicare/Medicaid dollars anyway. And there are those “harms” associated with screening.


The unfortunate few include a growing number of friends, and sons of friends, who have died of prostate cancer. These are not numbers, these are people.  People who would, I imagine, be happy to endure “harms” in place of a pine box.

Forty-two is too young to die

It catches me off guard every time.  Sitting in my office writing a letter when the radio in the background catches my attention with a news story about Brian C. McIntyre...a broadcast news person who died of prostate Cancer at the age of forty-two.

I stopped working for a few moments and thought about the, relatively, young life taken.  The effect of his loss upon family and friends and the contributions Brian may have made now lost.

Would early detection have prevented Brian's death?  I have no idea of the circumstances surrounding Brian's disease and treatment.  But I do know this, for most, with early detection and treatment prostate cancer is curable...not just treatable...curable!

Forty-two is too young to die.  DRE's and PSA tests are not infallible (far from it), but they're the best screening modalities currently available.  Don't hesitate...I don't want to hear any more stories like Brian's.

Johns Hopkins' Health Alert

There is so much information available regarding Prostate Cancer, it's difficult to know where to begin. Not all the information you find online is accurate, nor is it all relevant.

One source I have utilized, and recommended to others, is the Johns Hopkins' Health Alert.

Recently Health Alert offered a resource that appears to be most comprehensive focusing upon recent studies, the Johns Hopkins' “Prostate Cancer Outlook 2012.”  While I have yet to receive the volume, the topics are of great interest to me and provocative with respect to trends, recent findings, and emerging approaches.

You can subscribe to Health Alert at no charge by going to:

http://www.johnshopkinshealthalerts.com/

In addition to other information, you will receive information on “Prostate Cancer Outlook 2012” once you have subscribed.

NOTE to Johns Hopkins' ('cause I know your Google-alert found this): you may forward any commission via Paypal :)

Warren Buffet, Illusionist

When I was diagnosed with stage one prostate cancer the physician said to me, “If you were ten years older, we'd probably tell you not to worry about it...you'll likely die of something else long before this will kill you.”

Now, I'm no spring chicken (Holy Crap is that an understatement), but I'm almost two decades younger than Warren Buffet.

Radiation treatment may be a palliative for investors in Berkshire Hathaway Fund, but it's not going to do much for Warren (Yeah, I know him well enough to call him Warren...NOT!). In fact, with few visible signs of treatment, I wouldn't be surprised if Warren shows up at the treatment facility each day, enters a room, reads the Wall Street Journal, emerges and departs sans treatment.

Skeptic? Yep.

HiFU for PC

Received this link via Facebook from my friend Tom Carto in Wisconsin...the future of treatment is very promising.

"Thought you would be as interested in this as I have been.   Hopefully this could be yet another option for those with the same diagnosis we had."

http://www.telegraph.co.uk/health/healthnews/9206425/New-treatment-for-prostate-cancer-gives-perfect-results-for-nine-in-ten-men-research.html

Relay for Life

I spent a few minutes this weekend at a rally for the upcoming Relay for Life.  Relay, if you're not familiar with it, is an event of the American Cancer Society. Yes, it's a fund raiser...but it's much more.

Many years ago, before my personal experience with cancer, I was asked to MC an event for the local Relay.  I didn't know anything about the event, but I said yes because...well, because I'm a ham and jump at any chance to be before an audience.

At the end of the evening, they had a candle ceremony asking everyone to light a candle in remembrance of someone whose life had been touched by cancer; friend or relative - survivor or succumbed.  When they offered me a candle I declined explaining I was only the MC, not a part of the event.  But they insisted, so I thought, “OK, I'll do this in honor of my friend Wayne...no wait, I'll do this in honor of my grandmother...no wait, my sister, wait, my Mother....”

Then it hit me, I really needed to be a part of this.  After that, I spent several years volunteering for Relay but, in time, I drifted to other causes.

Now that I am a survivor, I'm back to Relay.  I'm going to walk proudly, and thankfully, in the survivor's lap, then remain for the rest of the event and raise whatever I can so more might join me in wearing a survivor shirt.

If you've never attended a Relay...visit one.  You don't have to participate to attend.  I'd suggest going for the Luminaria Ceremony around sunset.  The first time I attended remains one of my most memorable experiences.  The rest of the Relay is filled with laughter, tears, smiles, memories, and HOPE!

For new readers

If you, or someone you know, has been diagnosed with prostate cancer or has a concern regarding prostate health, the earliest posts in this blog (from 2011) chronicle my early PSA tests, biopsy, diagnosis, treatment decision, and subsequent events on the road to recovery.

It may be helpful at a time when many feel all alone.

A different path

Yesterday I had my first opportunity to speak with a gentleman I met shortly after we had both been diagnosed with prostate cancer.

While I was in the very early stages of research into treatment options, Dave had already made his decision in favor of external beam radiation.

Not too long after I returned to work I heard, second hand, Dave was suffering some side effects of his continuing treatment...but I did not speak to him personally until yesterday.

Dave looked well, said he was feeling great, and was most enthusiastic about his treatment choice.  “The only negative aspect to the process,” Dave said, “was the daily trip to the hospital for those several weeks.”

Recent visits to the oncologist have been very positive and Dave's PSA levels bob up and down, but all within a very limited, and acceptable, range.

We promised we'd buy each other a beer when we next see each other in the evening.  Life is good.

Oh crap!

We have just returned from ten days of pure pampering...ten days filled with great wine, remarkable food, and wonderful sunshine.  Relaxation was the name of the game with little attention paid to physical fitness. And then I opened my accumulated mail.

The first newsletter I read contained a very brief article describing a recent study finding the addition of just five pounds of body weight with a year following prostate surgery is correlated to a statistically significant increased chance of reoccurring.  Five pounds!?  Hell, I did that in ice cream the first week.

I believe the lesson to be learned here...avoid reading.

During our trip, I had the opportunity to meet many wonderful people from all over the world. And had conversations with two regarding their experience with prostate cancer.  One gentleman, Bob, had elected for surgery and was doing extremely well...he is eighty-five years old, but one would never guess it.  This had been his third cancer diagnosis and he said, “It was an easy decision. Get it out of here!”  Bob and his wife were great fun...as long as the Blackjack dealer was turning the right cards.

The second gentleman was a retired attorney (OK, attorneys never really retire...they just lose their briefs) who had elected external beam radiation more than twenty years ago, “When I was just sixty-four,” he told me, and he's was still going strong (no pun intended...we didn't talk about that).

Once again, every survivor is a strong advocate for their chosen treatment. In addition, these two were both engaging, entertaining, enjoyable men who have chosen to live their lives to the fullest.  Another lesson to be learned...and lived.

Relay for Life

Several years ago, when the local program was in it's infancy and struggling, I became involved in Relay for Life.  I participated for many years and enjoyed every part of this remarkable event.  Then I lost touch...no reason, no conflict...I just drifted away.

Yesterday I encountered Relay on Facebook and thought, “Hey! I'm a survivor, I should reconnect and be a part of it.  So I left a message for the local committee that I'd like to participate...I don't know the date, location, I don't know nothin'!

If you've never attended a Relay for Life, visit this year.  The “Hope Walk” (if that's what it's called...I've forgotten) just after sunset is a touching and beautiful event.   But there's something going on all the time, with lots of celebrating, remembering, laughing, crying, walking, and running.

We have all been touched by cancer.  Relay for Life funds research, celebrates survivors, encourages those currently in the battle, and remembers those for whom the fight is over. It is also one hell of a lot of fun!

How 'bout a quickie?

A friend emailed today and mentioned he was going to visit the Urologist next week.
 My advice,  "Don't turn your back on him!"

Stimulate me

Has anyone got an idea (s) for more on prostate health, my experience, questions or comments?  It's like I achieved the 100 post level and everything stopped; my brain has shut down and is awaiting stimulation.

On turning 100

This is the 100th posting in this series.  Over the course of my diagnosis, biopsy, treatment decision, surgery, and recovery I've tried in these pages to bring my own experience forward as honestly as possible (pretty damn honest if you ask me), in order to assist others, and their significant others, who may be facing the issues I encounteres.

I have met a lot of people through these musings and been humbled when asked for information or just to be a sounding board.

One issue that will not go away (for good reason) is the PSA controversy.  Below is a link leading to an interesting article regarding a study of more than 100,000 men over 11 years published in the New England Journal of Medicine last Wednesday.  The article examines the controversy and demonstrates the difficult position in which many physicians find themselves.

http://on.msnbc.com/wZPWk8

As for me, I'm going to enjoy a glass of wine tonight and celebrate the attainment of 100 (posts, not years...yet). Join me!  Ummmmm...join me metaphorically, don't show up, I can't afford that much wine.

Canadian club for health care

It's Friday and, although this is not specifically about prostate health, I'm passing along this story because, well, because it's my blog!

Two weeks ago, a vendor who works with Lucia was on the phone mentioning she was not feeling well...but was feeling frustrated.

The vendor lives in Canada and she has what she believes to be an ear infection that is causing an ear ache and making her dizzy.  In fact, she has been so unsteady she is missing some work and enduring bouts of nausea.

The Canadian health care system, the same system so many point to as the model toward which we should strive, has responded by offering her an appointment with a physician...in June.  Our suggestion: get on the phone and make an appointment across the border with a US physician.

I am very grateful I was able to receive treatment when I needed it.  I'm concerned about what may happen to our accessible health care when some bureaucrat is deciding who needs care and who can wait.

I prefer to be in charge of my own health care.

Take charge of your life and have a great weekend with family and friends.

On the return to normalcy

In conversation with my friend in Phoenix, who recently had a radical prostatectomy, he noted he was going to be able to return to working out within the next week or two.  That's a big deal, a very big deal!

Milestones, as I've noted before, are important...and the more one is able to return to the routines that existed before surgery, the more one recognizes life is returning to normal.

No longer does one have to concentrate on recovery...it just continues to happen.  Those activities of daily living that recently consumed time and thought once again become simply activities.

In my own case, I no longer think with every step how fortunate I am as I run in the morning...I just run. It's not that I am not grateful for my remarkable recovery, I am indeed.  But I have returned to my life much as it was lived before cancer...and it feels, well, normal.  Has it changed?  Without question...but it's once again what I recognize as my life.

And life is good.

Antibiotics prevent cancer spread?

Apparently whenever I mention something in this blog, the universe responds by sending me more...wish I had known this when I was in high school, I would have mentioned a few young ladies (if I had a blog in high school...and if we had the internet...and computers...uh oh, getting depressed here).

Yesterday I received two more health newsletters I've never seen before, and both were offering breakthrough miracles, one of which had to do with prostate health. I do read any article that mentions prostate cancer and, once again, I learned something, maybe.

One newsletter heralded tetracycline for those with either breast or prostate cancer. The claim is tetracycline prevents these cancers from spreading to bones. A cheap, readily available prophylactic for bone cancer...if valid, that's important information (if not, it's exceedingly cruel offering false hope). I'm certainly eager to hear from anyone who might shed additional light.

A study reported in the media today linked circumcision with reduced likelihood of developing prostate cancer. Within the report, it was mentioned that the number of circumcisions are declining and the reported cases of prostate cancer are climbing. Without seeing the study, I have to wonder if this is correlation rather than cause and effect?

The same study reports males circumcised before having sex are 15% less likely to develop prostate cancer;  I wonder if this means immediately before (ouch)?

A very brief Un-update

Update on my continuing conversation with The American Red Cross:  Last week (see March 6 post "The Red Cross punts") I reported on my experience attempting to discern why I am not permitted to donate blood despite a piece of paper certifying I am cancer free (a certificate I'm willing to bet most people do not have)...no update as I have yet to receive the promised follow-up phone call.  Thus, un-update.

Over the weekend, I received another of the newsletters to which I subscribe (it's not a health newsletter, but carries reports from a number of disciplines).  This edition has a brief article about a study from an internationally known health clinic in Cleveland.  The article refers to the sixteen percent of American men who will develop prostate cancer. The study finds men who take Avodart, Proscar, or Propecia for benign enlarged prostate have a twenty-six percent lower risk of developing prostate cancer...but those who do have a slightly elevated chance of the cancer being of the more aggressive type.  

I'm not sure what to do with this information.

Being held hostage

Several months ago I subscribed to a new health newsletter for two reasons; one, this doctor seemed different than the others, and two, I'm stupid.  Suddenly I'm getting junk mail from every doctor who has the “Unknown Cures” for everything...and I can have access to all of them in the “Free Reports” I'll receive if I subscribe to his newsletter.  Apparently selling a mailing list is another money making opportunity for some author/healers.

The latest received offers “Free Report #6” entitled, What to Do if You Have Prostate Cancer.

It is pointed out, one American man dies of prostate cancer every 15 minutes...more than 40,000 each year. The reader is then teased about a new highly effective treatment available that has no side effects (other than 5% who report brief feelings of nausea).  Thousands of successful procedures have been performed, many insurance plans cover it, and you can have a list of the hospitals providing it...........IF you subscribe.

I don't have a clue, or even a WAG, as to the nature of the treatment, but I do have brief feelings of nausea every time I read a sales piece like this. If you know something available that could be of benefit, but hold it hostage...I've got a great suggestion for what you can do with your newsletter.

Have a great weekend. Hug your family, get outside and play, have a glass of wine (or two).

Good news!!!!

The phone rang last evening, it was my friend who, with his wife, visited one recent evening to talk about his slightly elevated PSA and a nodule detected during a DRE.  An earlier post (see "A friend in need" posted Feb. 15) describes his fears, concerns, and my suggestion he had nothing to fear before the biopsy...and, once known, we would decide what to do with the results.

With a smile that could be heard through the phoneline, he began the conversation saying, “The biopsy came back and there is no cancer. The doctor thinks the nodule is probably just a calcium deposit.”

I congratulated him and told him how happy, and relieved, I felt for him.

Were the PSA test and DRE unnecessary? After all, had neither test been done, no biopsy would have been ordered, no fear would have surfaced, and no medical bill would have been generated.

On the other hand, had the biopsy findings been more ominous, the problem could have been addressed immediately if treatment was his wish.

From our conversation, the assurance of no cancer made the biopsy, concerns, and cost well worthwhile. Did doctors make a few bucks? Yep, but what is the price of peace of mind?

Freedom!

Monday marked fifteen weeks since my surgery and yesterday I returned to the surgeon's office for my first and, as it turned out, last follow-up visit. In preparation for the visit I had some lab work done, specifically a PSA test which should read zero...it did.  The surgeon told me there was no need to return to his office, but I must monitor my PSA every six months for the next five years.

Because I'm not available to pen an article today, I'm presenting a link provided by my dentist-lawyer-author-artist-indian chief and friend, Ken Jones.  Ken is always quick to remind us of the important role our spouse and family play in treatment/recovery. (copy and paste into your browser)

http://www.everydayhealth.com/prostate-cancer/partner-care.aspx?xid=aol_eh-prostc_1_20110227_&aolcat=AJA&icid=maing-grid7|main5|dl7|sec3_lnk3%26pLid%3D139616

The Red Cross punts

 

Just heard from the Red Cross with regard to my email inquiry yesterday...they phoned!  Here was the question:

I was recently denied for donation because I had a radical prostatectomy in November.   I was told I had to be cancer free for one year before I could donate.  My question...with slow growing asymptomatic cancers, how does one know before diagnosis? (writer's note: it seemed to me there could be tens of thousands of people with cancer donating every year)  What is the ARC position on screening for prostate/breast cancers?  Why would I be denied after receiving a clean biopsy post surgery (I'm sure most donors do not have such a report)?

In response to my inquiry, they initially had a new employee speak to me...she quickly handed me off to a supervisor. Apparently the donation policy is an FDA regulation, which the Red Cross could not explain other than “donor safety” (which they also could not explain). I asked for an FDA reference so I could read the regulation myself; the supervisor promised to kick me upstairs for another call from someone else.

So, as it stands, apparently I'm at risk if I give blood until I've been cancer free for 12 months (an undefined risk of...ummm...something), but there is no issue of my blood being unacceptable (I was told no post-donation testing is done for any cancer marker...hell, I don't even know if there is such a marker but I liked the way the question sounded).  If this were not a serious issue (to me), this would be fun!!!

Finally, kudos to the American Red Cross for attempting to answer my questions; many organizations would not bother.  I truly appreciate their attention and look forward to further information.

Blood spilled needlessly

I attempted to give blood last week...and was refused. The worst part was having them stick my finger before going over the questions that would, ultimately, disqualify me as a donor.  I hate that finger prick...it hurts more than donating.   Note to Red Cross: Ask your damn questions before sticking me!!!

The nurse began to review my answers by asking aloud every computer provided question to which I had responded affirmatively. “Do you have any heart or lung problems?”  Yep, asthma. “Do you have, or have you had, cancer?”  Yep. “What kind of cancer?”  Prostate “What was the date of your last treatment?”  I didn't have treatments, I had surgery. “How long ago was your surgery?”  November 21. “I'm sorry, you're not eligible to donate...you need to be cancer free for a year.”

Now this gets interesting...prior to (and following) diagnosis,I had no symptoms; in all likelihood, I had cancer the last time I donated. If one ascribes to the latest fad of no testing...how many people are going to be donating blood who have cancer?  Is that OK with the Red Cross?  If so, why the hell can't I donate after the only (known) cancer in my body has been removed?  I have a piece of paper that certifies no cancer in surrounding tissues or lymph nodes.

In the face of the movement to do away with screenings for prostate cancer, and mammograms for breast cancer, how confident should the public be of the blood supply?  I think I'll address this to the Red Cross and see how they respond...then I'll report back to all y'all (the proper plural of the singular y'all).

Of course, I could have lied....

Of Politics and Prostates

OK, we all know most politicians are dicks...this is not about that.

I run in the early morning hours (I leave the house around 3:45am) when it's quiet...it's when I do my best thinking. This morning as I ran I had a troubling thought.

Lately, I've written several blogs about articles suggesting we're doing too much testing and providing too much treatment for prostate cancer and, yesterday, breast cancer. The argument is we are treating cancers that may not be fatal and risking side effects from what may be unnecessary treatments.

Thinking about what was driving all this discussion while running, I came to the conclusion we are being prepared for the new reality in healthcare insurance (read that...”set up for Obamacare”).

Testing and treatment are expensive, particularly the treatment which, of course, isn't required if one is not tested. Some diagnosed patients may die before treatment can begin, others, undiagnosed, may die of something else not involving expensive treatment (accident, heart attack, etc), still others may present such an aggressive cancer that palliative care is all that can be offered. But at least we won't have all these surgeries, radiation or chemo therapies adding to the huge cost of government healthcare.

What better way to reduce what is arguably going to be a budget busting program than eliminating treatment for all but those cases that progress to the point of presenting obvious symptoms? And, perhaps, beginning treatment at an advanced age (which I've noticed isn't so advanced as I age) will be discouraged. How long should we carry those old folks anyway...after all, that's when healthcare is really expensive and they've already had a full life.

Targeting such prevalent cancers as breast and prostate for reduced diagnosis and, thereby, treatment is an effective way to reduce the costs by assuring everyone they probably don't need regular testing and early treatment anyway. Helps thin the herd as well.  But isn't that the premise of the entire insurance industry?  It's unlikely for everyone, but devastating for the unlucky few.  Of course, I'm sure the doctor who wrote the article suggesting regular PSA screening and mammograms are not required carries malpractice insurance in the unlikely event she makes a mistake.

Am I paranoid...nope, I'm a thinker, a thinker without a prostate and glad of it. Watch 'em folks, hip replacements and heart disease could be next.

Well, I've depressed myself on a Friday, and that ain't easy!  Think I'll go for another run and try to think of something fun!

.357 foreplay

OK, apparently putting something to do with guns in a title does even more than sex to excite the search engines; yesterday's post was a record breaker.  Imagine the two together...well, you don't have to imagine it, after all, you're reading this.

You know those little phony wooden signs with the clever sayings sold in tourist shops everywhere? My favorite read, “It pays to be smart 'cause then you know stuff.” Go ahead, argue with that.

One of the things unsaid is that knowing too much can be an impediment to common sense. I refer to yet another article by a physician advising men against PSA tests and women to avoid mammograms. Once again I read, “...Even though some of the cancers now being treated would never have grown fast enough to cause problems in the first place....We do not know for sure they will develop into harmful cancers.”

I'm sure this all comes as reassuring information to the young widow in our community who recently lost her husband to a prostate cancer he didn't treat.

Isn't the entire insurance industry built upon the premise of protecting against that which is not likely, but devastating to the unlucky few? Insurance coverage seems like a fairly intelligent decision.  In fact, I'll bet the doctor who wrote the article in question carries malpractice insurance in the unlikely event she makes a mistake.

Could I have done without the surgery? Sure. Did I risk incontinence and ED? Yep. Would I do it all again rather than see another young widow in my community (well, I wouldn't see her, but you know what I mean)?  You bet...in fact, you bet your life!

The 9mm solution

I am a handgun enthusiast...and I try to get to the range at least once a week in my desire to improve my skills.

Last week I mentioned I had not disposed of the package of Depends I purchased in anticipation of the incontinence that never, (much to my surprise and delight) occurred.

Last night I combined the two and had a great time using one of the afore mentioned Depends as a target. Fifty rounds of 9mm ammunition did a great job of obliterating the diaper while, at the same time, affirming my own “Declaration of “InDependsence.” (even I groaned at that one)

The balance of the package will now be donated to a local nursing home.

As I was first telling the above story to the staff here at the office I used the unfortunate phrase, “...and I shot the crap out of my diaper,” which was not at all what I had intended to communicate...

Denial...a (mostly) male affliction

One thoughtful reader, Robert, sent me a link to an article looking at the issue of prostate screening generally and PSA testing specifically. Robert prefaces the link with the following observation:

"I'm all for looking at all the information that is available when you make any important decision but this article concerns me. We men have a strong tendency to switch on the denial when there is a threat to our health. I can see how reading this could add fuel to that fire."

The article itself, the major thrust of which is research demonstrating the questionable value of regular prostate screening, is filled with wiggle words like:

“That's not to say there's no benefit from screening,”

“We shouldn’t be predetermining for patients" whether they should get screened,”

“meaning the researchers cannot definitely say that screening for prostate cancer is not beneficial,”

So...the article attempts to remain firmly grounded on both sides of the fence. And, like Robert, I worry such articles may be used by men as justification to avoid dealing with “issues prostate.” Women do a much better job of working honestly with their physicians than do we.

Yes prostate cancer is, a great percentage of the time, a slow growing disease making most patients very likely to die of something else before the prostate cancer. Yet the CDC tells us, “Prostate cancer is the most common cancer in men in the U.S., not counting skin cancer. It is the second most common cause of cancer death in men.” http://www.cdc.gov/Features/CancerAndMen/

It's old, but true, ”Denial is not a river in Egypt.” and for some with prostate cancer, it can be fatal.

Play the odds

Today, February 27, marks exactly fourteen weeks since my surgery. On this anniversary, it is fitting that, following my run this morning, the final scab fell off from the surgical site. Once again I present the smooth, sleek, athletic body I possessed prior to the procedure.

OK, I never looked that good to begin with, but I've come a long way, baby.

Reading a report this morning, one statistic jumped off the page at me. A full 60% to 85% of those who opted for radical prostatectomy report a period of 18 months before return of erectile function.

As I have noted previously, I was fortunate in regaining function very early in my recovery.  But discounting my experience, I none-the-less find the above statistic very encouraging as it reads that 60% to 85% regained function after only 18 months.

Given there must be a percentage of patients who, like myself, regain function in less than 18 months, the odds of regaining function in 18 months or less are even greater.

There are men who will never regain function, a known risk of the procedure, and there is a percentage who will wait longer than 18 months. But the odds are in your favor.

Abundant choice

At a meeting yesterday, a friend approached me to talk about his father who recently decided to go with seeds for treatment (Brachytherapy).  He wanted to know what I thought of the decision! I told him everyone with whom I've spoken who made that choice has been very happy with the decision.

On this Friday, let's agree to not argue about the best therapy, but be happy we have so many excellent therapies from which to choose and more (and more exciting) on the way.

Crotch crutch

I received another email asking for details of my diagnosis and what factors contributed to my decision to opt for surgery. I provided a brief synopsis of the requested material, and referred the writer to my early blogs detailing the process from diagnosis through my treatment decision and beyond.

While it's gratifying to know I can be of some assistance to men facing decisions, I need to be clear that I am not a champion of surgery for all...my treatment decision is just that, my decision and cannot be generalized to others. Everyone needs to evaluate his own circumstances and arrive at the decision with which he and his family is most comfortable and makes sense.

On another topic, I noted this morning the package of unused Depends on the floor of my closet. Interestingly, I realized (and I'm not proud of this) I did not want to either throw them out or contribute them to someone who has a need.  Instead, I chose to leave them where they are as a reminder of how fortunate I've been...that and just in case ('cause you never know).

How long will it be before I give up the Depends crutch (crotch crutch)? I have no idea...it's sort of like the question, “How long will I be able to use my disease/surgery to get out of doing things I just don't want to do?” At some point it no longer makes sense...a point probably evident to everyone else long before I figure it out.

Free beer tastes better

A friend and his wife stopped by the other evening to drink beer and talk, what else, prostate. His doctor found a nodule during a DRE and then saw a slightly elevated PSA; next step...biopsy, but my friend was already concerned and wanted to talk about options and outcomes.

His personal circumstances are far different than mine and, having yet to receive a diagnosis, I suggested it may be premature to talk about treatment before the biopsy, but we had a long discussion none the less. Further, he is ten years my senior which also makes his decision different than mine.

Add to this his family physician and his urologist telling him he may have a decision to make, but offering options without opinions, has only served to increase his anxiety. It's a familiar story to those of us who have been through it, and that's where we can be of service.

Although he never said it, it was my impression he was more concerned about the possibility of having a catheter than anything else. I completely understand this as well.

In the end, I believe he was seeking someone to listen who understands. We had another beer and ended the evening with him feeling somewhat better and assured we would be there to help in any way we could if needed.  Best of all, he brought the beer!

A story of successful surgery

My friend who chose open surgery for his treatment sent me a note yesterday:

“We are now at exactly three weeks since the surgery. I was in the hospital
from 5 am Monday to 2 pm on Tuesday. Thanks for the email.
My pain was minimal and I did not have to take a lot of pain meds. I had the
catheter until a week last Thursday - we named it "Peabody the First" (with
an English accent!) The removal of that puppy was a non event thank
goodness! Went back to work last Monday and just took half days for the rest
of the week. The biopsy came back completely clear!! So, I am good to go for
the rest of my life - yehaa! Haven't enjoyed the Depends - but am off of the
undies now am on the small pads for security reasons. Have three more weeks
before I can start working out. Thanks for all of your prayers and thoughts,
it has really meant a lot to me. I guess God has got some more work for me
to do.”
As I've mentioned before, one of the factors making a treatment decision so difficult is the outcomes for the various options are almost identical. I know that sounds counter-intuitive (if every choice is good, how could it be difficult...just pick one and go)...but it's a fact.

For me, yesterday marked thirteen weeks since surgery and, as Lucia noted this morning, I've come a long way.

Here's hoping positive outcomes for everyone.

Blog Obscura....................................sex (sorry)

Arriving at the office more than 90 minutes early today, I logged onto the internet and reviewed my emails and usual general interest sites...then I thought, “I wonder how high up the pecking order my blog ranks after 80 posts?” Huge ego error...

First I queried “prostate blogs” resulting in 31 million results. I searched through the first 15 pages and discovered several interesting blogs, but mine was not among them. Some of the blogs I of note included “Ronnie's Prostate Blog,” “Rick's Prostate Cancer Blog,” “God and Prostate” (who knew?), “Harry's Prostate” (which I first read as Harry Prostate and laughed until I reread it), the unfortunately named “Peter and Prostate Cancer,” and a blog about which I wish to know absolutely nothing titled “Prostate Milking,” eeeeuuuuwww.

I decided to refine my search to the name of this blog and entered “There Goes My Prostate” resulting in more than 14 million results...again, I did not make the first 15 pages.

Further refinement to William Sharp There Goes My Prostate (including Bill Sharp in the search) again failed to list my blog in the first 15 pages of results.

And so:  Congratulations, you have found one of the most obscure blogs on the planet. Apparently, blog optimization is not a subject I can teach. But this does not dampen my dedication and desire to bring hope and information to men, and their families, facing prostate issues.   Hell, you found me!

Weekends are made for this

Having spent from 6:45am to 8:00pm yesterday engaged in community activities, I did not have an opportunity to post.  And I just recognized it has been more than 24 hours since I have even thought about my prostate, prostate health, or my surgery...I guess the recovery remains on track for resuming what passes for normalcy in my life.  Nice.

Enjoy your weekend.

A friend in need

A friend stopped me in the store the other day, I could tell he was upset.  “Bill,” he began,”I'm going to need your help.  I'm dealing with a prostate issue now, and I know what you went through.”  To be honest, I went through very little.

I asked if he had had an biopsy, and he told me he had not, but that was the next step.  So I told him to give me a call with any questions about the biopsy before the procedure, or to call me once he has the results if they find anything.

My friend has significant challenges, unrelated to his prostate issue, I did not face at the time of my experience.  Should he find himself without someone available to be with him at the time he returns for the biopsy results...I can be with him.  Should he find himself in need of treatment without someone to assist with transportation...I can be with him.  Should he need someone to assist with physical activities during recovery...I can be with him.

But what he said to me was, “I'm going to need help getting through this mentally if it proves to be anything of consequence.”  And I can be with him there as well.

Today, a diagnosis of prostate cancer, even an aggressive prostate cancer, is not a death sentence.  New treatments are being developed regularly...many with very encouraging results.  But my friend is correct, there is a huge mental component to illness that cannot be ignored...and having a strong support network is imperative to a successful outcome.

Male teens: bizarre lifeform

I work with a group of high school sophomores from every public high school in my county as well as the two largest parochial schools. As I prepared their work for today, I wondered how much male teenagers might know about prostates and prostate health...after all, it's something most of us were not even aware of until well into our adult lives.

I put together a very brief quiz that listed six organs, and asked the male students to identify the location of each organ in the body and it's function. The organs were:

Heart

Lungs

Liver

Kidney

Pineal Gland

Prostate Gland

Admittedly, the pineal gland was a bit of a stretch for high school sophomores...but I never said it was fair.

The majority had little difficulty with the first four organs, and several got the pineal gland location right (none knew its function). The prostate was another story.

Every one of the male students (11) had the location close enough for my purposes...one was quite specific and correct. When it came to function, I believe there was either chatter or texting going on because every paper, with the exception of the location winner who had no idea, listed the function as “Dude Juice.”

Although not a definition I was expecting (and remember, they're only sophomores), they at least had some vague limited idea of anatomy and physiology.

This brings to mind the question; when should we begin to talk with men about prostate health? Is there any reason for a sixteen year old to be introduced to something that is, for the most part, not an issue until well into adulthood? Is it unreasonable to introduce a disease so ubiquitous among males in our culture at an earlier age?

I have a lot more questions and no answers...but I'll entertain any opinion(s) you wish to share.